Understanding PCOS Causes, Symptoms & treatment
Welcome to the PCOS Hub, your go-to resource for understanding and navigating Polycystic Ovary Syndrome (PCOS). If you've recently been diagnosed, you're likely feeling a whirlwind of emotions—relief, fear, and uncertainty about what comes next. You're not alone.
Did you know that 1 in 10 women have PCOS, yet up to 70% of them remain undiagnosis. It's a common condition, but the journey from diagnosis to understanding can feel overwhelming. Perhaps you've found yourself lost in a sea of information online, unsure of where to turn next.
That's where the PCOS Hub comes in. Our mission is simple: to empower you with the knowledge and support your needs to navigate PCOS with confidence. In this post, we'll dive into the basics of PCOS, exploring its causes, symptoms, and associated medical conditions. We'll also demystify the diagnostic process, ensuring you have a clear understanding of your condition.
But our journey doesn't stop there. We'll also explore the different treatment options available, equipping you with the tools to make informed decisions about your health. From medication to nutrition and beyond, we'll cover it all.
So, whether you're newly diagnosed or have been living with PCOS for years, we invite you to join us on this journey of understanding and empowerment. Together, we can navigate PCOS with confidence and support.
Ready to dive in? Let's get started.
What is PCOS?
Polycystic Ovary Syndrome, or PCOS, is the most common endocrine disorder affecting women of reproductive age. Depending on factors like demographics and diagnostic criteria, it impacts between 6% and 21% of women.
It's crucial to understand that PCOS isn't a disease but rather a syndrome characterized by various symptoms, often linked to insulin and androgens. Despite its name, PCOS isn't primarily about cysts on the ovaries; those visible on ultrasounds are immature eggs that haven't developed properly.
What causes PCOS?
While the exact cause of PCOS remains unknown, a combination of genetic and environmental factors is believed to play a role. Recent studies emphasize hyperandrogenism and insulin resistance as key features, impacting various body systems beyond just the ovaries. Some advocates suggest a name change to better encompass the full range of symptoms.
PCOS is characterised by:
Hyperandrogenism: This happens when there's an excess of androgens, a group of sex hormones in your body. It may show up as hirsutism (excessive hair growth), alopecia (hair loss), and acne.
Ovulatory dysfunction: irregular or infrequent periods.
Polycystic ovarian morphology (PCOM): Ovaries exhibiting a polycystic appearance (ovarian cysts), characterized by the presence of numerous small, underdeveloped eggs, are detectable through ultrasound imaging.
Common Signs & Symptoms
PCOS manifests through a variety of symptoms that can vary in severity among individuals. Common signs include:
Irregular periods or no periods: Periods may be irregular or even absent.
Oligo-anovulation: reduced ovulation, impacting fertility
Infertility: Difficulty getting pregnant.
Hirsutism: excess hair growth on the face and body.
Alopecia: Hair loss.
Acne: Skin breakouts.
Skin tags: Small growths on the skin.
Weight Gain: Putting on weight, especially around the waist.
PCOS & Co-Morbidities
PCOS is often associated with a range of co-morbidities and can lead to various health complications including:
Metabolic syndrome
Hypertension (high blood pressure)
Hypothyroidism
Sleep apnea
Type 2 diabetes
Increased risk of Gestational diabetes
Obesity
Anxiety
Depression
Infertility
Cardiovascular Disease (heart disease)
Endometrial cancer
Overview of Diagnosing PCOS
Polycystic Ovary Syndrome (PCOS) brings a unique set of challenges during the diagnostic journey, and you're certainly not alone in experiencing frustration. There is no single test for PCOS which adds a layer of complexity to the diagnostic process. The diverse range of symptoms experienced by women with PCOS has led to evolving diagnostic criteria over the years.
To put this into perspective, a study highlighted that for over a third of women, the road to a PCOS diagnosis was met with frustration, taking more than two years and visits to three or more health professionals.
The diagnostic process involves a comprehensive assessment, considering medical history, physical examinations, and specific tests. The goal of PCOS diagnosis is to identify characteristic symptoms while ruling out other potential causes. Patience is key here, as PCOS manifests differently in each individual.
When it comes to diagnosing PCOS, your doctor will have a thorough discussion about your symptoms, medications, and medical history. They might suggest multiple tests based on your unique presentation.
PCOS is diagnosed using the Rotterdam criteria, requiring the presence of two or more of the following symptoms:
Irregular menstrual periods or absent periods
Physical symptoms such as acne, excess facial or body hair, hair loss or high levels of androgens through blood tests.
Ultrasound showing polycystic appearing ovaries indicated by the presence of 20 or more immature follicles on one ovary and/or an ovarian volume exceeding 10ml.
Key tests & Examinations
Understanding your PCOS often involves undergoing specific tests and examinations to confirm a diagnosis and determine the best course of treatment. Here are the key tests and examinations commonly used in diagnosing PCOS.
Medical History: questions will be asked about your menstrual history, family history, symptoms, any weight changes and whether have you been trying to conceive.
Physical Exam: will be conducted to assess for signs of excess androgen, such as acne, and excess hair growth.
Blood tests: to measure hormone levels and to exclude other possible causes of your symptoms. Blood tests to identify high androgen levels include Free Androgen Index (FAI), Free Testosterone: Sex Hormone Binding Globulin (SHBG), luteinizing hormone (LH), and follicle-stimulating hormone (FSH).
Ultrasound: to check the appearance of your ovaries. This can be done Internally and externally by looking for polycystic ovaries, for a PCOS diagnosis you need 20+ follicles on one ovary.
Other tests: your healthcare provider may also check: blood pressure, glucose tolerance test, cholesterol and triglyceride levels, and screening for depression and anxiety. Thyroid panel, Vitamin D, CRP, Reproductive hormones, DHEAS and Insulin.
Treatment options for PCOS
Living with Polycystic Ovary Syndrome (PCOS) involves a multifaceted approach to addressing symptoms, promoting overall well-being, and navigating specific concerns you might have such as fertility.
Thankfully various treatment options exist. Management commonly involves a combination of contraceptives, metformin for insulin resistance management, and lifestyle modifications. Lifestyle management, including diet and exercise, is considered first-line therapy for PCOS management.
However, you may have encountered less-than-helpful suggestions, like simply being advised to lose weight, take this medication, and return when you want to have a baby. Recognising the challenges many face in finding meaningful support, it's crucial to explore the best treatment for your unique needs and goals.
Diet and lifestyle
Balanced Diet: Adopting a balanced and nutritious diet can help manage PCOS symptoms, particularly insulin resistance. Focus on whole foods, complex carbohydrates, lean proteins, healthy fats and fibre.
Regular Exercise: Physical activity is crucial for managing weight and improving insulin sensitivity. Find an exercise routine that you enjoy, whether it's yoga, walking, or strength training, and make it a consistent part of your lifestyle. Aim for 150 hours of exercise per week.
Prioritize Sleep: Adequate sleep is essential for your health. Establish a regular sleep routine, create a comfortable sleep environment, and aim for 7-9 hours of sleep each night.
Manage Stress: Stress can exacerbate PCOS symptoms. Incorporate stress-reducing activities such as meditation, deep breathing exercises, or hobbies that bring joy and relaxation.
Regular Health Check-ups: Stay proactive about your health by attending regular check-ups with healthcare professionals. This ensures that any changes in symptoms or treatment needs are addressed promptly.
Medications
In addition to lifestyle changes, various medications are available for treating PCOS and its associated symptoms: Your healthcare provider might recommend:
Combination birth control pills.
Progestin therapy
Clomiphene
Letrozole (Femara)
Metformin
Gonadotropins.
Spironolactone (Aldactone).
Eflornithine (Vaniqa).
Hair removal.
Acne treatments.
The Role of Nutrition in Managing PCOS
When it comes to managing PCOS, one crucial aspect to consider is your nutrition. Making intentional choices about your diet can play a significant role in managing the symptoms of PCOS and promoting overall well-being. While there's no one-size-fits-all diet for women with PCOS, understanding the basics of nutrition can help you make empowered decisions about your health. Let's dive into some actionable tips to guide you through changes you can make:
Balanced Diet: Focus on whole grains, lean proteins, fruits, vegetables, and healthy fats.
Low-Glycemic Foods: Choose low-glycemic foods to help regulate blood sugar levels. These include whole grains, legumes, and non-starchy vegetables. Limit processed and refined carbohydrates.
Protein Intake: Include adequate protein in your diet, as it can help with satiety and weight management. Sources of protein can include lean meats, poultry, fish, eggs, dairy, and plant-based options like beans and tofu.
Healthy Fats: Incorporate sources of healthy fats, such as avocados, nuts, seeds, and olive oil.
Healthy Weight Goals: Maintaining a healthy weight is often beneficial for individuals with PCOS. Even a modest weight loss can lead to improvements in hormonal balance, menstrual regularity, and insulin sensitivity.
Gradual Changes: Focus on making gradual and sustainable changes to your lifestyle rather than opting for extreme diets or exercise regimens. Small, consistent modifications are more likely to result in long-term success.
Consult with Professionals: Consult with healthcare professionals, including nutritionists and fitness experts, to create a personalized plan. They can guide you on setting realistic goals and making sustainable changes.
Monitor Progress: Keep track of your progress, not just in terms of weight, but also in how you feel. Positive changes in energy levels, mood, and overall well-being are important indicators of success.
Emotional Well-being and PCOS
Living with PCOS can present emotional challenges that may impact your overall well-being. Understanding how PCOS can affect your mental health and learning strategies to cope with these challenges is crucial for managing your emotional health.
Addressing Mental Health Challenges Associated with PCOS
Understanding Emotional Impact: Recognize that a PCOS diagnosis can evoke a range of emotions, including anxiety, depression, and frustration. Acknowledge these feelings and understand that they are valid responses to the challenges you may be facing.
Educate Yourself: Learn about the potential mental health challenges associated with PCOS, such as increased risk of anxiety and depression.
Mindfulness and Stress Reduction: Incorporate mindfulness techniques, such as meditation and deep breathing exercises, into your daily routine. These practices can help manage stress, improve mood, and enhance overall emotional well-being.
Seek Professional Support
Therapy and Counseling: Consider seeking the guidance of a mental health professional, such as a therapist or counsellor. They can provide a safe and supportive space to explore your emotions, develop coping strategies, and address any mental health challenges associated with PCOS.
Psychiatrist Consultation: If necessary, consult with a psychiatrist for an evaluation of mental health symptoms like anxiety or depression.
Open Communication with Healthcare Providers: Maintain open communication with your healthcare providers about any mental health concerns. They can collaborate with mental health professionals to ensure comprehensive care that addresses both physical and emotional aspects of PCOS.
Encouragement for a Positive Outlook
Focus on Progress: Celebrate small victories and progress on your PCOS journey. Whether it's adopting a healthier lifestyle, managing symptoms effectively, or achieving personal goals, acknowledge and appreciate the positive changes.
Adaptability: PCOS management may require adjustments over time, but developing the ability to adapt to new information and treatment options will help you in the long run.
Self-Compassion: Be kind to yourself. Living with PCOS can be challenging, but practising self-compassion and acknowledging all your efforts can do wonders for your journey ahead.
Empowerment Through Knowledge: Knowledge is a powerful tool. Continue to educate yourself about PCOS, and empower yourself with the understanding that with the right management strategies, many individuals lead fulfilling and successful lives with PCOS.
Life Beyond Diagnosis: Recognize that you are not your diagnosis, PCOS is just one aspect of your life. Focus on what you love to do, goals, and relationships, and don't let PCOS stop you from achieving your goals.
Building Supportive Networks: Surround yourself with supportive friends, family, and a health care provider who understand and validate your experiences.
Recap of Key Points
That’s all for now. I hope this comprehensive blog post has shed light on the complexities of PCOS and provided you with valuable insights to navigate this journey with confidence.
Remember, understanding PCOS involves multiple facets. Here's a quick summary of key takeaways:
Understanding PCOS: PCOS is a hormonal disorder with a range of symptoms. It involves hormonal imbalances, insulin resistance, and genetic factors.
Diagnosis of PCOS: The diagnostic process includes medical history, physical examinations, blood tests, and ultrasound.
Treatment of PCOS: Options include medications, lifestyle modifications, and emotional support.
Lifestyle Management: Prioritize balanced nutrition, regular exercise, and stress management.
Emotional Well-being: Address the emotional impact through seeking professional support, building supportive networks, and maintaining a positive outlook.
With this knowledge, you can navigate PCOS with confidence and resilience. Remember, you're not alone on this journey. You can thrive despite the challenges. Here's to your health and well-being!